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Happy National Volunteer Week! |
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Tuesday, 17 April 2012 05:20 |
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Happy National Volunteer Week!
April 15th - 21st marks National Volunteer Week! We are fortunate to have many dedicated volunteers, some who have served us for over 25 years! We would like to extend our gratitude to all our volunteers whether their time commitment was huge or small. Your contribution has positively impacted many lives affected by Spina Bifida & Hydrocephalus and for that were are truly grateful. Happy National Volunteer Week! |
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Last Updated on Tuesday, 17 April 2012 05:23 |
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2012 Family Camp at Zajac Ranch |
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Thursday, 05 April 2012 03:34 |
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Zajac Ranch Camp 2012 Pre-Registration Subsidy Form
The Spina Bifida and Hydrocephalus Annual Family Camp will be held at the Zajac Ranch this year from Friday, June 29 to Monday, July 2nd.
Our association has committed $12,500.00 to the camp this year for subsidies.
Camp registration is now open and if you would like to attend please visit the Zajac Ranch website and print off the 2012 Spina Bifida Camper Application form and sibling / parent forms .
Please mail your camper application to the Zajac Ranch directly. They must be received at the Zajac office by May 18th.
A deposit of $100 per family is required and should be sent directly to us with the subsidy request form.
Subsidies for the remainder are only available to members of SBHABC.
If you have any questions regarding the camp please call James Cullen at the Zajac Foundation 604 739 0444, if you have any questions regarding the subsidy form call Pauline Dooley at SBHABC 604 878 7000. |
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Last Updated on Thursday, 05 April 2012 03:40 |
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Make a Difference- Enroll in the spina bifida study |
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Tuesday, 20 March 2012 04:22 |
Help Make a Difference, with a few minutes of your time
 The Spina Bifida Genetics Research Project is starting the second phase of a study to determine if genetic variations in folic acid metabolism account for an increased risk of having a child affected by Spina Bifida. From the results of the study, it may be possible to develop a test that can identify women who may not be adequately protected by standard prenatal vitamins, but who might benefit from high dose folic acid therapy prior to conception.
We are seeking mothers who have had children with Spina Bifida, and who did not participate in the first phase of this study, which was conducted in 2009-2010. We are also enrolling mothers of children who have not had children affected by Spina Bifida to serve as controls for the analysis.
Participants in the study are asked to complete a brief online survey and provide a DNA sample using a simple, at-home saliva collection kit that is delivered and returned by mail. For more information and to enroll in the Spina Bifida Genetics Research Project, please go to the website at www.sbgenetics.org and select ENROLL. The website and survey are available in both English and Spanish.
Upon completion, participants may choose to receive a $10 gift card or we will donate $10 to a spina bifida organization of your choice.
The Spina Bifida Genetics Research Project includes scientists from UC Berkeley, Stanford University, UC San Francisco, Children’s Hospital Oakland Research Institute and VitaPath Genetics.
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Last Updated on Tuesday, 20 March 2012 04:27 |
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Friday, 30 March 2012 02:53 |
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March 26, 2012
By Sylvie Paillard
Alex Kilba is like most 19-year-olds. He thinks about girls, gets impatient with Mom’s worrying, and enjoys the street cred he gets when he drops in to a steep incline at the McArthur Island skateboard park.
Where he stands out is what he rides in that graffiti covered concrete park — a wheelchair. And for that, he gets more respect than most.
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Last Updated on Friday, 30 March 2012 03:04 |
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Read more...
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2012 Annual General Meeting |
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Tuesday, 20 March 2012 04:10 |
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The Spina Bifida and Hydrocephalus Association of British Columbia’s Annual General Meeting will be held on Tuesday, May 15th, 2012 at 5:30 p.m. in Conference RM 1K-185 located on the main floor in the Green section of Ambulatory Care Bldg at BC Children’s Hospital.
The purpose of this meeting is to receive the Annual Financial Report, review the Annual Report and elect the directors for the SBHABC Board for 2012-2013. If you are unable to attend the meeting please print and fax the proxy form to Pauline Dooley at 604.677.6608 no later than 6:00 p.m. on May 11th, 2012.
For more information please call Pauline at 604.878.7000.
If you are a member but cannot attend, please download and complete the proxy form. |
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Last Updated on Tuesday, 20 March 2012 04:20 |
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