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Spina Bifida & Hydrocephalus Association of BC
4480 Oak Street, Vancouver, BC V6H 3V4
Tel: (604) 878.7000 :: Fax: (604) 677.6608
Email: info@sbhabc.org

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Spina Bifida & Hydrocephalus Association of BC
Annual Family Picnic - June 26th PDF Print E-mail
Wednesday, 10 March 2010 15:07

Join us on Saturday, June 26th, 2010 from 1:30 p.m. to 4:30 p.m. for our Annual Family Picnic at the Queensborough Community Centre in New Westminster located at 920 Ewen Ave.

It will be a rain or shine event. We will supply the Hot Dogs, Hamburgers & Refreshments. Please bring a salad, fruit plate or dessert to share.  Extended family is welcome.

RSVP to Pauline @ 604.878.7000 or email This e-mail address is being protected from spambots. You need JavaScript enabled to view it
View directions

 
Spina Bifida Genetics Research Project PDF Print E-mail
Wednesday, 20 January 2010 12:35

SBHABC is very excited about the new research that is being conducted by SB Genetics.org and hope that you will participate! See details below on how you can help.
http://www.sbgenetics.org

SBgenetics.org logo

The Spina Bifida Genetics Research Project is enrolling mothers in a study to determine if genetic variations in folic acid metabolism account for an increased risk of having a child with Spina Bifida.  From the results of the study, it may be possible to develop a test that can identify at-risk women prior to conception.  They could then be treated by their physicians the same way as women who have had a child with Spina Bifida – with high dose folic acid supplementation.

Participants in the study are asked to complete a brief online survey and provide a DNA sample using a simple at-home saliva collection kit. For more information and to enroll in the SB Genetics Research Project, please go to the website at www.sbgenetics.org and select ENROLL. The website and survey are available in both English and Spanish. If you would prefer to take the survey by phone, call 1-866-561-3538.

Upon completion, participants may choose to receive a $10 gift card or to have SB Genetics donate $10 to their designated Spina Bifida organization. If the study results are positive, SB Genetics will provide complimentary versions of the test to participants.

The SB Genetics Research Project includes scientists from UC Berkeley, Stanford University, UC San Francisco, Children’s Hospital Oakland Research Institute and VitaPath Genetics.

 
2010 Family Camp at Zajac Ranch PDF Print E-mail
Wednesday, 20 January 2010 12:32

Spina Bifida and Hydrocephalus Association Annual Family Camp at the Zajac Ranch will be held on Thursday, July 1st  from 2 pm. to Sunday  July 4th at 11 am. Master members are invited to apply to SBHABC for our subsidy.

The forms have been mailed out and are also  available here zajacprereg2010.pdf. They must be returned with a deposit no later than Monday, March 8th, 2010.


 

Last Updated on Tuesday, 16 February 2010 09:26
 

 
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