|
Wednesday, 20 January 2010 12:38 |
|
It is with great sadness we announce the unexpected passing of Jamie Stout.
Jamie was born on August 16th, 1983 and passed away on October 11, 2009.
Jamie was just 26 years old but he had touched the lives of so many in this short time.
He is survived by his father, Richard, mother, Patricia and brother, Cory and
many loving family members and friends from across Canada and the United States.
Jamie joined our Board of Directors in 2007.
He will be forever remembered for his courage, his joy for life, his hard work and devotion to others, his infectious smile, his reaching out to anyone and everyone, his advocacy for those in need, and how he made wherever he lived, studied or worked a better place.
An online tribute for Jamie can be found at http://www.kearneyfs.com/home.html
In Jamie’s words: “See ya, luv ya, bye!” |
|
|
Spina Bifida Genetics Research Project |
 |
 |
 |
|
Wednesday, 20 January 2010 12:35 |
|
SBHABC is very excited about the new research that is being conducted by SB Genetics.org and hope that you will participate! See details below on how you can help.
http://www.sbgenetics.org
The Spina Bifida Genetics Research Project is enrolling mothers in a study to determine if genetic variations in folic acid metabolism account for an increased risk of having a child with Spina Bifida. From the results of the study, it may be possible to develop a test that can identify at-risk women prior to conception. They could then be treated by their physicians the same way as women who have had a child with Spina Bifida – with high dose folic acid supplementation.
Participants in the study are asked to complete a brief online survey and provide a DNA sample using a simple at-home saliva collection kit. For more information and to enroll in the SB Genetics Research Project, please go to the website at www.sbgenetics.org and select ENROLL. The website and survey are available in both English and Spanish. If you would prefer to take the survey by phone, call 1-866-561-3538.
Upon completion, participants may choose to receive a $10 gift card or to have SB Genetics donate $10 to their designated Spina Bifida organization. If the study results are positive, SB Genetics will provide complimentary versions of the test to participants.
The SB Genetics Research Project includes scientists from UC Berkeley, Stanford University, UC San Francisco, Children’s Hospital Oakland Research Institute and VitaPath Genetics. |
|
|
2010 Family Camp at Zajac Ranch |
|
|
|
|
Wednesday, 20 January 2010 12:32 |
|
Spina Bifida and Hydrocephalus Association Annual Family Camp at the Zajac Ranch will be held on Thursday, July 1st from 2 pm. to Sunday July 4th at 11 am. Master members are invited to apply to SBHABC for our subsidy.
The forms have been mailed out and are also available here zajacprereg2010.pdf. They must be returned with a deposit no later than Monday, March 8th, 2010.
|
|
Last Updated on Tuesday, 16 February 2010 09:26 |
|
|
