Research Study Opportunity for Youth 12 to 30 yrs living with a Physical Disability -McGill University ( Posted Jan 2021)
We are conducting a research project to evaluate participation in daily activities at home, school, community, and the workplace, using a questionnaire called the Y-PEM (Youth, Young Adult Participation and Environment). We need your assistance to test whether the Y-PEM can capture your participation and whether it is valid and consistent. If you are interested to be part of our study, please contact us at or .
For more information click here.
Paid Research Opportunity
Evaluating marketing messages for Physical activity campaigns ( 18yrs +) Queens University Revved Up Lab is recruiting participants 18yrs + with a self-identified physical disability. For more info click here
SBHABC Board Meeting
Wednesday, April 21, 2021, @ 6:30 p.m. Spina Bifida & Hydrocephalus Board meeting
Wednesday, May 19, 2021 @7:30 p.m. Spina Bifida & Hydrocephalus AGM More Info
Disabled Community Connection Network
Disabled Community Connection Network (DCCN) is a monthly communication and information group for people of all ages (16+) with any disability. This group is hosted by the North Shore Disability Resource Centre. This group is facilitated by and for people with disabilities.
The next group is Thursday, April 15th “Accessible Design” with Karen Lai Accessibility Planner for the City of Vancouver.
When: April 15th, 4:00PM - 6:00PM PST on Zoom
ASL Interpretation is provided!
Please Email or call 604-985-5371 to register and for the Zoom login information
As an Accessibility Planner for the City of Vancouver, Karen also works as an independent consultant in accessibility and inclusion. She works with businesses and organizations to increase the accessibility and inclusion of people with disabilities. She holds a Master of Arts in Human Kinetics where she examined the social theories behind social inclusion of people with disabilities. She has more than 20 years of working alongside with individuals with disabilities in the field of recreation, employment, government, and other community involvements.
During the most recent years, Karen has worked with many service providers in the analysis of inclusion within their HR policies, facilitated staff training, exploring employment opportunities for people with cognitive disabilities, or supporting event planning.
She is a trained facilitator who leads honest and authentic conversations about inclusion by instilling a sense of not knowing and curiosity, thus, shifting the culture of disability. It is her belief that inclusion has so many layers, but enjoys working with individuals, companies, organizations, and municipalities to work towards building an inclusive environment.
Since birth, Karen has lived with Cerebral Palsy which have caused her to encounter barriers in every aspect of her life. Due to her lived experience, she has a strong passion to ensure that we all work together to build inclusive spaces so that every person is valued and respected.
One Time $600 Disability Tax Credit
The Government of Canada has announced a one-time payment of up to $600 for persons with disabilities to assist with additional expenses during the pandemic. The Government will provide the payment automatically to some individuals. If individuals do not have a Disability Tax Credit certificate, or if their certificate expired in 2019, they should send an application to the Canada Revenue Agency. The application must be received by the CRA by September 25, 2020. Click here for a factsheet that explains who may be entitled to receive the one-time payment and how to apply for the Disability Tax Credit. CRA is hosting webinars from Aug 13 to Sept 1 on this program and more relating to people with disabilities. For more info click here
CANADA'S FIRST EVIDENCE-BASED PRENATAL EDUCATION PROGRAM VIA TEXT MESSAGING
Text messages are delivered at no cost, are timed to be relevant to gestational age, and include links to online resources and local services. The program also offers supplemental text messages for specific concerns. SmartMom is endorsed by the Society of Obstetricians and Gynaecologists of Canada ( SOGC).
For more info visit smartmomcanada.ca
Please note our office remains open to serve you during the COVID 19 pandemic. We can be reached via phone or email.
We will not be meeting with clients at this time as we practice safe social distancing. We can, however, arrange contactless delivery or curbside pickup if need be of supplies or equipment.
We will continue to review all applications
for funding as received.
We hope you are all staying safe.
Click here for a list of Financial Resources available for Individuals who are affected by COVID 19 courtesy of Access Law.
Our Sincere Thanks to Dean Chernoff, Becky, Harmony Ward Loop, Crystal Carroll and Amanda L for hosting Facebook fundraisers on their birthdays. Many Thanks to their friends and family who gave a donation to us on their behalf.
Free Online Course for Professionals working with Parents with Physical Disabilities
Course - Caring for Pregnant and New Parents with Physical Disabilities #17969
Developed by Karen Hodge, Melanie Basso & Amanda Lee
For more info or to register, click Here
Many Thanks to The Hagkull Family of Chilliwack for their continued support of our pop tab program. They recently sent us $305.10 for pop tabs that they had collected on our behalf.
is A FREE online tool that families and people with disabilities can use to create a beautiful and personalized information booklet for a loved one or for themselves.
Are you tired of constantly repeating your "story" to doctors, teachers, therapists, friends, and family?
Do you wish all your important information was in one document?
Do you wish you could share more than just the medical and diagnostic facts?
If you answered yes to any of these questions, you'll want YOUR OWN myBooklet now!
Click Here to get started.
Participate In Research
Nov 20, 2019 Survey on Accessibility in Canada
KITE, which is the research arm of the Toronto Rehabilitation Institute is conducting on accessibility in Canada. The purpose of the study is to learn about the main barriers to accessibility that persons with a disability, older adults (65 years old or older) who do not have a disability, and caregivers for persons with a disability encounter in Canada.
Click Here to learn how you can be involved.
Oct 30, 2019 INNOVATIVE TECHNOLOGY FOR PEOPLE WITH
DISABILITIES AND THEIR CAREGIVERS
Dr. Mortenson and his research team from the University of British Columbia are looking for volunteers to participate in a study prioritizing technological solutions for people with disabilities and their caregivers.
Click Here to learn how you can be involved.