World Folic Awareness Week

  Jan 6 to 12 , 2020

World Folic Acid Awareness Week (Monday 6th - Sunday 12th January 2020) is the annual rallying point for growing global awareness of the importance of Folic Acid in the prevention of Neural Tube Birth Defects (NTDs). This year marks the 4th anniversary of this global event initiated by the International Federation for Spina Bifida and Hydrocephalus (IF) in 2017.  


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MyBooklet BC

is A FREE online tool that families and people with disabilities can use to create a beautiful and personalized information booklet for a loved one or for themselves.

  • Are you tired of constantly repeating your "story" to doctors, teachers, therapists, friends, and family?

  • Do you wish all your important information was in one document?

  • Do you wish you could share more than just the medical and diagnostic facts?

If you answered yes to any of these questions, you'll want YOUR OWN myBooklet now!

Click Here to get started.


SBHABC Board Meeting

Wednesday, January 15, 2020 @ 6:30 p.m. Spina Bifida & Hydrocephalus Board meeting

Disabled Community Connection Network


DCCN's  next session will be 

Thursday, November 21, 2019, from 4 p.m - 6p.m 

The session " From Patient to Person: Navigating through life with a Disability, and finding Hope !" will feature guest speaker Erik Le Anderson. He is an outdoor enthusiast and nature photographer, as well as a person with a disability who has found a path through life with aid from others. When Erik was younger, he lived overseas before moving to Vancouver. Erik graduated from UBC with a BA in political science and history. Currently, he is a student with the goal of becoming a Peer Support Worker.

Details Here


Participate In Research       

Nov 20, 2019 Survey on Accessibility in Canada


KITE, which is the research arm of the Toronto Rehabilitation Institute is conducting on accessibility in Canada. The purpose of the study is to learn about the main barriers to accessibility that persons with a disability, older adults (65 years old or older) who do not have a disability, and caregivers for persons with a disability encounter in Canada.

Click Here to learn how you can be involved.



Dr. Mortenson and his research team from the University of British Columbia are looking for volunteers to participate in a study prioritizing technological solutions for people with disabilities and their caregivers.

Click Here to learn how you can be involved.


Our Sincere Thanks to Dean Chernoff, Becky, Harmony Ward Loop, Crystal Carroll and Amanda L for hosting Facebook fundraisers on their birthdays. Many Thanks to their friends and family who gave a donation to us on their behalf.

Call us:

604 878 7000



Find us: 

4480 Oak Street , Vancouver BC  V6H 3V4

Mailing Address:

Suite 228  102-15910 Fraser Highway, Surrey BC V4N 0X9

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