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1977 - 2022
45 Year Anniversary 

 This year marks the 45th  year anniversary of the Spina Bifida & Hydrocephalus Association of British Columbia.

We are so fortunate that the parents in 1977 had the wisdom to create a society and registered charity.

A look at the register of 1977  lists the directors as

Christine Farris

Steven Gable

Beverley Hebert

Beverley Ann Moody

Loretta Joyce Nyberg 

Wendy Thompson

William Dadson

While throughout the years the directors have changed, one thing remained constant, the passion to make sure that individuals and families are supported.

Support comes in many forms these days with help with medical supplies, equipment, bursaries for post-secondary, and the ability to access education materials on many of the facets of Spina Bifida and Hydrocephalus.

We extend our gratitude to the directors, both past and present, who are keeping the association moving forward and to you the members who contribute both through volunteerism or monetary. Thank you!

Always know, we are here to support you and accompany you on your journey with Spina Bifida & Hydrocephalus!

BC Women's Access Clinic


Did you know BC Women’s has a specialized gynecological clinic for women and adolescents with disabilities ? For more information visit


CTV News recently did a segment on Normal Pressure Hydrocephalus  and interviewed neurosurgeon ,Dr. Mark Hamilton of Calgary . To see the article and segment click here 

You can now apply online for the Disability tax credit!


Did you know that you, or your legal representative, can now submit Form T2201, Disability Tax Credit Certificate, and all supporting documents online? This change will make the application process for the credit easier and more accessible for eligible Canadians. 

Form T2201, Disability Tax Credit Certificate, and any supporting documents, can now be submitted using the secure online tool “Submit Documents” in My Account or Represent a Client. After submitting your information, you will also get confirmation that the Canada Revenue Agency (CRA) has received the documents.

For more info click here

Archived News

Wheelchair Basketball's Ben Hagkull inspires Cheam Elementary School Students Click Here​ for the story.

Squamish's Alex Cairns has solid para-alpine season. Click Here for the story.

Congratulations to our two members  who will compete in the 2018 Paralympics !

See their stories by clicking on text below.

 Ethan Hess Story Courtesy of Pique

Alex Cairns Story Courtesy of the Squamish Chief

Squamish Athlete takes 14th out of 37 in sit-skiing at Paralympics

World Folic Awareness Week

  Jan 6 to 12 , 2020

World Folic Acid Awareness Week (Monday 6th - Sunday 12th January 2020) is the annual rallying point for growing global awareness of the importance of Folic Acid in the prevention of Neural Tube Birth Defects (NTDs). This year marks the 4th anniversary of this global event initiated by the International Federation for Spina Bifida and Hydrocephalus (IF) in 2017.  


Banners for Social Media

 In Honor of Dr. William (Bill) J. D. Arnold who passed away on July 20, 2017, a few days after his 88th birthday, we have set up the Dr. William J.D. Arnold Award. (See details here).
Dr. Arnold was a respected pediatrician at BC Children’s Hospital for many years and he was the founder of the Spina Bifida Clinic. He will be deeply missed. 

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