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World Folic Awareness Week

  Jan 6 to 12 , 2020

World Folic Acid Awareness Week (Monday 6th - Sunday 12th January 2020) is the annual rallying point for growing global awareness of the importance of Folic Acid in the prevention of Neural Tube Birth Defects (NTDs). This year marks the 4th anniversary of this global event initiated by the International Federation for Spina Bifida and Hydrocephalus (IF) in 2017.  


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Sept 18, 2019 The Meaning of Health and Wellness in Adolescents and Youth with Spina Bifida


Dr. Amy McPherson is conducting a health and wellness research project for young people with spina bifida between 10-24 years of age. 

Click Here to learn how you can be involved.

You can now apply online for the Disability tax credit!


Did you know that you, or your legal representative, can now submit Form T2201, Disability Tax Credit Certificate, and all supporting documents online? This change will make the application process for the credit easier and more accessible for eligible Canadians. 

Form T2201, Disability Tax Credit Certificate, and any supporting documents, can now be submitted using the secure online tool “Submit Documents” in My Account or Represent a Client. After submitting your information, you will also get confirmation that the Canada Revenue Agency (CRA) has received the documents.

For more info click here

BC Women's Access Clinic


Did you know BC Women’s has a specialized gynecological clinic for women and adolescents with disabilities ? For more information visit

Archived News

Wheelchair Basketball's Ben Hagkull inspires Cheam Elementary School Students Click Here​ for the story.

Squamish's Alex Cairns has solid para-alpine season. Click Here for the story.

Congratulations to our two members  who will compete in the 2018 Paralympics !

See their stories by clicking on text below.

 Ethan Hess Story Courtesy of Pique

Alex Cairns Story Courtesy of the Squamish Chief

Squamish Athlete takes 14th out of 37 in sit-skiing at Paralympics

Research Participants Needed 


Jan 8, 2019 


Sunnybrook Research Institute in Toronto is conducting a study on pregnancy complications and outcomes in women with Spina Bifida Study.  If you would like to help them, please click here to access the survey. All women with Spina Bifida are eligible to participate.


 In Honor of Dr. William (Bill) J. D. Arnold who passed away on July 20, 2017, a few days after his 88th birthday, we have set up the Dr. William J.D. Arnold Award. (See details here).
Dr. Arnold was a respected pediatrician at BC Children’s Hospital for many years and he was the founder of the Spina Bifida Clinic. He will be deeply missed. 


CTV News recently did a segment on Normal Pressure Hydrocephalus  and interviewed neurosurgeon ,Dr. Mark Hamilton of Calgary . To see the article and segment click here 

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